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'It's a hard conversation to have'. Healthcare professionals' views concerning advance care discussions with young people affected by life-limiting neuromuscular diseases
OBJECTIVE: Life-limiting neuromuscular disease, such as some of the muscular dystrophies, are often diagnosed in early childhood: when death comes, commonly in the second or third decade of life, patients rarely have advance...
communication Family management Neurological conditions Supportive care Transitional Care Adolescent advance care planning Attitude of Health Personnel Attitude to Health communication Critical Illness Health Personnel Humans Neuromuscular diseases Professional-Patient Relations Terminal Care Young Adult