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How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study
Amy Simpson, Lara Bloom, Naomi J. Fulop, Emma Hudson, Kerry Leeson-Beevers, Stephen Morris, Angus I. G. Ramsay, Alastair G. Sutcliffe, Holly Walton, Amy Hunter
Feb 10, 2021
Abstract: Background: Care coordination is considered important for patients with rare conditions, yet research addressing the impact of care coordination is limited. This study aimed to explore how care coordination (or lack...
Automated Insulin Delivery in Adults.
Hybrid closed-loop (artificial pancreas) systems have recently been introduced into clinical practice for adults with type 1 diabetes. This reflects successful translation from research studies in highly supervised settings to...
Artificial Pancreas Hybrid closed-loop Inpatient diabetes Psychosocial impact type 1 diabetes Adult Automation Blood Glucose Blood Glucose Self-Monitoring Diabetes mellitus Type 1 Equipment Design Female Hospitalization Humans Hyperglycemia Insulin Insulin Infusion Systems Male Pancreas Artificial Pregnancy Pregnancy in Diabetics
How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study.
Amy Simpson, Lara Bloom, Naomi J Fulop, Emma Hudson, Kerry Leeson-Beevers, Stephen Morris, Angus IG Ramsay, Alastair G Sutcliffe, Holly Walton, Amy Hunter
Mar 15, 2021
BACKGROUND: Care coordination is considered important for patients with rare conditions, yet research addressing the impact of care coordination is limited. This study aimed to explore how care coordination (or lack of) impacts...
The Psychosocial Impact of Undergoing Prophylactic Total Gastrectomy (PTG) to Manage the Risk of Hereditary Diffuse Gastric Cancer (HDGC).
Nina Hallowell, Julia Lawton, Shirlene Badger, Sue Richardson, Richard H Hardwick, Carlos Caldas, Rebecca C Fitzgerald
Sep 11, 2018
Individuals identified as at high risk of developing Hereditary Diffuse Gastric Cancer (HDGC) are advised to undergo prophylactic surgery - have their stomach removed - in their early twenties. Research with (older) cancer...