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Cover Image for Surveillance recommendations for DICER1 pathogenic variant carriers View Article
Surveillance recommendations for DICER1 pathogenic variant carriers
Jette J Bakhuizen, Helen Hanson, Karin van der Tuin, Fiona Lalloo, Marc Tischkowitz, Karin Wadt, Marjolijn CJ Jongmans, SIOPE Host Genome Working Group, CanGene-CanVar Clinical Guideline Working Group, Expert Network Members
Oct 01, 2021
DICER1 syndrome is a rare genetic disorder that predisposes to a wide spectrum of tumors. Developing surveillance protocols for this syndrome is challenging because uncertainty exists about the clinical efficacy of surveillance...
Cancer predisposition syndrome DICER1 hereditary SURVEILLANCE DEAD-box RNA Helicases Heterozygote Humans Neoplastic Syndromes Hereditary Penetrance Ribonuclease III Ultrasonography United Kingdom
Cover Image for The GRAPPA-OMERACT Working Group View Article
The GRAPPA-OMERACT Working Group
Ying Ying Leung, William Tillett, Ana-Maria Orbai, Alexis Ogdie, Lihi Eder, Laura C Coates, Richard Holland, Anna Antony, Niti Goel, Philip J Mease
Jun 30, 2020

The Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA)-Outcome Measures in Rheumatology (OMERACT) Psoriatic Arthritis (PsA) working group provided updates at the 2019 GRAPPA annual meeting on its...

Arthritis Enthesopathy fatigue Humans Outcome Assessment Health Care Reference Standards
Cover Image for The GRAPPA-OMERACT Working Group View Article
The GRAPPA-OMERACT Working Group
Ying Ying Leung, William Tillett, Ana-Maria Orbai, Alexis Ogdie, Lihi Eder, Laura C Coates, Richard Holland, Anna Antony, Niti Goel, Philip J Mease
Jun 30, 2020

The Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA)-Outcome Measures in Rheumatology (OMERACT) Psoriatic Arthritis (PsA) working group provided updates at the 2019 GRAPPA annual meeting on its...

Arthritis Enthesopathy fatigue Humans Outcome Assessment Health Care Reference Standards
Cover Image for Assessment of venous hemodynamics and volume homeostasis during pregnancy View Article
Assessment of venous hemodynamics and volume homeostasis during pregnancy
W Gyselaers, M Spaanderman, International Working Group on Maternal Hemodynamics
Nov 22, 2018
Venous hemodynamics and volume homeostasis are important aspects of cardiovascular physiology. However, today their relevance is still very much underappreciated. Their most important role is maintenance and control of venous...
maternal hemodynamics plasma volume Pregnancy venous hemodynamics venous return volume homeostasis Blood Flow Velocity cardiac output Cardiovascular Physiological Phenomena Consensus Development Conferences as Topic Female Guidelines as Topic Hemodynamics Homeostasis Humans Maternal Health Pregnancy Pregnancy Complications Cardiovascular Prenatal Diagnosis Uterine Artery
Cover Image for Changing the name of diabetes insipidus View Article
Changing the name of diabetes insipidus
Working Group for Renaming Diabetes Insipidus, Hiroshi Arima, Timothy Cheetham, Mirjam Christ-Crain, Deborah Cooper, Mark Gurnell, Juliana B Drummond, Miles Levy, Ann I McCormack, Joseph Verbalis, John Newell-Price, John AH Wass
Nov 16, 2022
'What's in a name? That which we call a rose/By any other name would smell as sweet' (Juliet, from Romeo and Juliet by William Shakespeare). Shakespeare's implication is that a name is nothing but a word, and it therefore...
Diabetes Insipidus renaming
Cover Image for Working for the future View Article
Working for the future
Tochukwu Nweze, Mary Basil Nwoke, Juliet Ifeoma Nwufo, Richard Ikechukwu Aniekwu, Florian Lange
Jun 12, 2020
BACKGROUND: The dominant view based on the deficit model of developmental psychopathology is that early adverse rearing impairs cognition. In contrast, an emerging evolutionary-developmental model argues that individuals exposed...
Deprivation adverse rearing Cognition executive functions INHIBITION set-shifting Working memory Child Cognition Executive Function Humans INHIBITION Psychological Memory Short-Term Nigeria
Cover Image for Safety of blood donation by individuals over age 70 and their contribution to the blood supply in five developed countries View Article
Safety of blood donation by individuals over age 70 and their contribution to the blood supply in five developed countries
Mindy Goldman, Marc Germain, Yves Grégoire, Ralph R Vassallo, Hany Kamel, Marjorie Bravo, David O Irving, Emanuele Di Angelantonio, Whitney R Steele, Sheila F O'Brien, Biomedical Excellence for Safer Transfusion Collaborative (BEST) Investigators
Jan 29, 2019
BACKGROUND: Some countries impose an upper age limit on whole blood and double RBC donation while others do not. We evaluated the safety of blood donation in older individuals (≥71 years), and their contribution to the blood...
Adult Age Factors Aged Blood Donors Blood Safety Female Humans Male Middle Aged Risk Factors Safety syncope Vasovagal
Cover Image for The British Neurosurgical Trainee Research Collaborative View Article
The British Neurosurgical Trainee Research Collaborative
Aswin Chari, Aimun A Jamjoom, Ellie Edlmann, Aminul I Ahmed, Ian C Coulter, Ruichong Ma, Paul May, Paul M Brennan, Peter JA Hutchinson, Angelos G Kolias, British Neurosurgical Trainee Research Collaborative
Nov 28, 2018
Since its inception in 2012, the British Neurosurgical Trainee Research Collaborative (BNTRC) has established itself as a robust example of a trainee-led research collaborative. This article summarises the work of the...
Clinical Trials Collaborative Research Resident Trainee Humans Internship and Residency Neurosurgery Neurosurgical Procedures Research
Cover Image for Collaborative facilitation and collaborative inhibition in virtual environments View Article
Collaborative facilitation and collaborative inhibition in virtual environments
A Guazzini, E Guidi, C Cecchini, E Yoneki
Jul 14, 2020
Worldwide, organizations and small and medium-sized enterprises have already disruptively changed in many ways their physiological inner mechanisms, because of information and communication technologies (ICT) revolution....
virtual dynamics collaborative inhibition collaborative facilitation DRM paradigm virtual teamwork
Cover Image for Effectiveness of a quality improvement collaborative in reducing time to surgery for patients requiring emergency cholecystectomy. View Article
Effectiveness of a quality improvement collaborative in reducing time to surgery for patients requiring emergency cholecystectomy.
JR Bamber, TJ Stephens, DA Cromwell, E Duncan, GP Martin, NF Quiney, JF Abercrombie, IJ Beckingham, Cholecystectomy Quality Improvement Collaborative
Oct 11, 2019
BACKGROUND: Acute gallstone disease is a high-volume emergency general surgery presentation with wide variations in the quality of care provided across the UK. This controlled cohort evaluation assessed whether participation in...
Acute Disease Cholecystectomy Emergency Service hospital England Gallstones Health Plan Implementation Humans Intersectoral Collaboration Patient Admission Program Evaluation Quality Improvement State Medicine Time Factors Time-to-Treatment Wales
Cover Image for Review of the psoriatic arthritis working group at OMERACT 12 View Article
Review of the psoriatic arthritis working group at OMERACT 12
William Tillett, Lihi Eder, Niti Goel, Maarten de Wit, Alexis Ogdie, Ana Maria Orbai, Willemina Campbell, Oliver FitzGerald, Neil J. McHugh, Dafna D. Gladman, Vibeke Strand, Philip J. Mease
Jun 01, 2015

At the 2014 annual meeting of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA), the psoriatic arthritis (PsA) working group of OMERACT (Outcome Measures in Rheumatology) presented a review...

OMERACT Outcome measurement Patient Participation psoriatic arthritis
Cover Image for Review of the psoriatic arthritis working group at OMERACT 12 View Article
Review of the psoriatic arthritis working group at OMERACT 12
William Tillett, Lihi Eder, Niti Goel, Maarten de Wit, Alexis Ogdie, Ana Maria Orbai, Willemina Campbell, Oliver FitzGerald, Neil J. McHugh, Dafna D. Gladman, Vibeke Strand, Philip J. Mease
Jun 01, 2015

At the 2014 annual meeting of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA), the psoriatic arthritis (PsA) working group of OMERACT (Outcome Measures in Rheumatology) presented a review...

OMERACT Outcome measurement Patient Participation psoriatic arthritis
Cover Image for Using VR for Collaborative Learning View Chapter
Using VR for Collaborative Learning
Jonathan Spike, Ying Xie
Jul 01, 2024
Although virtual reality (VR) has been technologically possible for decades, both logistical and pedagogical limitations have slowed progress relating to collaborating with others in virtual reality environments. This article...
Global Information Technology Computer Science and Information Technology Global Information Technology Physical Sciences and Engineering Business and Management
Published by: IGI Global Scientific Publishing
Cover Image for Biomagnetic biomarkers for dementia View Article
Biomagnetic biomarkers for dementia
Laura E Hughes, Richard N Henson, Ernesto Pereda, Ricardo Bruña, David López-Sanz, Andrew J Quinn, Mark W Woolrich, Anna C Nobre, James B Rowe, Fernando Maestú, BioFIND Working Group
May 03, 2019
INTRODUCTION: An increasing number of studies are using magnetoencephalography (MEG) to study dementia. Here we define a common methodological framework for MEG resting-state acquisition and analysis to facilitate the pooling of...
functional connectivity Harmonization Magnetoencephalography mild cognitive impairment Multi-site Spectral analysis
Cover Image for Collaborative Writing in the Intelligence Community View Article
Collaborative Writing in the Intelligence Community
Hongyang Liu, Byungsoo Kim, Sharon Joines
Jan 01, 2023
With new and evolving technology and ever-increasing remote collaboration, intelligence reporting processes are at a crossroads. Key questions about how best to collaboratively produce reports to get the right information to the...
E-Collaboration Media and Communications Social Computing
Published by: IGI Global Scientific Publishing
Cover Image for Research in progress--LungSEARCH View Article
Research in progress--LungSEARCH
Stephen G Spiro, Allan Hackshaw, LungSEARCH Collaborative Group
Sep 05, 2018
UNLABELLED: Low-dose CT screening for lung cancer is effective but expensive. Therefore, cheaper or more focused screening strategies may be required. LungSEARCH is a randomised prospective trial of 1568 high-risk individuals...
Lung cancer Bronchoscopy Early Detection of Cancer Flow Cytometry Humans Lung Neoplasms Mass Screening Neoplasm Staging Population Surveillance Prospective Studies Pulmonary Disease Chronic Obstructive Sputum Tomography X-Ray Computed
Cover Image for Report of the GRAPPA-OMERACT Psoriatic Arthritis Working Group from the GRAPPA 2015 Annual Meeting View Article
Report of the GRAPPA-OMERACT Psoriatic Arthritis Working Group from the GRAPPA 2015 Annual Meeting
Ana-Maria Orbai, Philip J Mease, Maarten de Wit, Umut Kalyoncu, Willemina Campbell, William Tillett, Lihi Eder, Musaab Elmamoun, Oliver FitzGerald, Dafna D Gladman, Niti Goel, Laure Gossec, Chris A Lindsay, Ingrid Steinkoenig, Philip S Helliwell, Neil J McHugh, Vibeke Strand, Alexis Ogdie
May 01, 2016

The GRAPPA-OMERACT psoriatic arthritis (PsA) working group is in the process of updating the PsA core domain set to improve and standardize the measurement of PsA outcomes. Work streams comprise literature reviews of domains...

Cover Image for The GRAPPA-OMERACT Psoriatic Arthritis Working Group at the 2018 Annual Meeting View Article
The GRAPPA-OMERACT Psoriatic Arthritis Working Group at the 2018 Annual Meeting
Ying Ying Leung, Ana-Maria Orbai, Alexis Ogdie, Laura C Coates, Maarten de Wit, Lihi Eder, Dafna D Gladman, Niti Goel, Philip J Mease, Vibeke Strand, Oliver FitzGerald, William Tillett
Jun 01, 2019

The Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA)-Outcome Measures in Rheumatology (OMERACT) Psoriatic Arthritis (PsA) Working Group reported at the 2018 GRAPPA annual meeting on the outcome...

Cover Image for Collaborative creativity in instrumental group music learning as a site for enhancing pupil wellbeing View Article
Collaborative creativity in instrumental group music learning as a site for enhancing pupil wellbeing
P Burnard, T Dragovic
Aug 10, 2017
This study explores the nature of the elements that co-influence collaborative creativity in instrumental group music learning and the intrinsic potential for enhancing pupil wellbeing as evidenced in a particular...
collaborative creativity music learning Wellbeing activity theory community of practice adolescents' extracurricular activity participation
Cover Image for Task-Shifting and Task-Sharing in Neurosurgery View Article
Task-Shifting and Task-Sharing in Neurosurgery
Faith C Robertson, Ignatius N Esene, Angelos G Kolias, Patrick Kamalo, Graham Fieggen, William B Gormley, Marike LD Broekman, Kee B Park, Collaborative Working Group
May 21, 2020
BACKGROUND: Because nearly 23,000 more neurosurgeons are needed globally to address 5 million essential neurosurgical cases that go untreated each year, there is an increasing interest in task-shifting and task-sharing (TS/S)...
capacity DRC Democratic Republic of the Congo Global Health Global neurosurgery LMIC LMIC Low- and middle-income country MOH Ministry of Health Task-shifting and task-sharing Task-sharing Task-shifting Workforce
Cover Image for Report of the GRAPPA-OMERACT Psoriatic Arthritis Working Group from the GRAPPA 2015 Annual Meeting View Article
Report of the GRAPPA-OMERACT Psoriatic Arthritis Working Group from the GRAPPA 2015 Annual Meeting
Ana-Maria Orbai, Philip J Mease, Maarten de Wit, Umut Kalyoncu, Willemina Campbell, William Tillett, Lihi Eder, Musaab Elmamoun, Oliver FitzGerald, Dafna D Gladman, Niti Goel, Laure Gossec, Chris A Lindsay, Ingrid Steinkoenig, Philip S Helliwell, Neil J McHugh, Vibeke Strand, Alexis Ogdie
May 01, 2016

The GRAPPA-OMERACT psoriatic arthritis (PsA) working group is in the process of updating the PsA core domain set to improve and standardize the measurement of PsA outcomes. Work streams comprise literature reviews of domains...

Cover Image for The GRAPPA-OMERACT Psoriatic Arthritis Working Group at the 2018 Annual Meeting View Article
The GRAPPA-OMERACT Psoriatic Arthritis Working Group at the 2018 Annual Meeting
Ying Ying Leung, Ana-Maria Orbai, Alexis Ogdie, Laura C Coates, Maarten de Wit, Lihi Eder, Dafna D Gladman, Niti Goel, Philip J Mease, Vibeke Strand, Oliver FitzGerald, William Tillett
Jun 01, 2019

The Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA)-Outcome Measures in Rheumatology (OMERACT) Psoriatic Arthritis (PsA) Working Group reported at the 2018 GRAPPA annual meeting on the outcome...

Cover Image for Patient centered guidelines for the laboratory diagnosis of Gaucher disease type 1. View Article
Patient centered guidelines for the laboratory diagnosis of Gaucher disease type 1.
A Dardis, H Michelakakis, P Rozenfeld, K Fumic, J Wagner, E Pavan, M Fuller, S Revel-Vilk, D Hughes, T Cox, J Aerts, International Working Group of Gaucher Disease (IWGGD)
Dec 21, 2022
Gaucher disease (GD) is an autosomal recessive lysosomal storage disorder due to the deficient activity of the acid beta-glucosidase (GCase) enzyme, resulting in the progressive lysosomal accumulation of glucosylceramide...
Review Lysosomal Storage Diseases Gaucher Disease Biomarkers enzyme activity Genetic Testing
Cover Image for Plain Radiographic Instruments for Structural Damage in Peripheral Joints in Psoriatic Arthritis View Article
Plain Radiographic Instruments for Structural Damage in Peripheral Joints in Psoriatic Arthritis
Anna Antony, Richard Holland, Ashish J. Mathew, Maria Antoinetta D'Agostino, Walter P. Maksymowych, Philip J. Mease, Niti Goel, Alexis Ogdie, Laura C. Coates, Vibeke Strand, Robin Christensen, Dafna D. Gladman, Ana Maria Orbai, Ying Ying Leung, William Tillett
Jun 01, 2022

The Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA)-Outcome Measures in Rheumatology (OMERACT) Psoriatic Arthritis (PsA) Core Set working group is focused on the development of a core set of...

GRAPPA Outcome Assessment psoriatic arthritis
Cover Image for Patient-reported outcome instruments for assessing Raynaud’s phenomenon in systemic sclerosis View Article
Patient-reported outcome instruments for assessing Raynaud’s phenomenon in systemic sclerosis
John D. Pauling, Tracy M. Frech, Michael Hughes, Jessica K. Gordon, Robyn T. Domsic, Marina E. Anderson, Francesca Ingegnoli, Neil J. McHugh, Sindhu R. Johnson, Marie Hudson, Francesco Boin, Voon H. Ong, Marco Matucci-Cerinic, Nezam Altorok, Marina Scolnik, Mandana Nikpour, Ankoor Shah, Janet E. Pope, Dinesh Khanna, Ariane L. Herrick
Oct 01, 2018

The episodic nature of Raynaud’s phenomenon in systemic sclerosis has led to a reliance on patient-reported outcome instruments such as the Raynaud’s Condition Score diary. Little is known about the utilization in routine...

patient-reported outcomes Raynaud’s phenomenon Scleroderma Survey systemic sclerosis

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